Before diagnosis
Wondering if it's autism
You've noticed something — a screening flagged it, a teacher raised a concern, or your own instinct has been telling you. Even before an official evaluation, there are clear practical steps you can take today.
The 30-second version
- Talk to your pediatrician and describe specific behaviors you've observed — not a diagnosis request, just what you're seeing.
- School districts must evaluate children age 3+ for free under IDEA — this is separate from a medical evaluation.
- Early Intervention serves children under 3 with no referral or diagnosis required.
- You don't need a diagnosis to request school supports — a documented educational need is enough.
What to observe and write down
Before any appointment, spend a few days writing down specific things you notice — not a diagnosis, just observations. Evaluators work from behavior descriptions, not impressions.
- Does not respond to their name by 12 months
- Has not said single words by 16 months or two-word phrases by 24 months
- Lost language or social skills at any age
- Avoids eye contact consistently
- Very strong reactions to sensory input (sounds, textures, lights)
- Plays with toys in repetitive or unusual ways
Two evaluation paths: medical and school
A medical diagnosis comes from a psychologist or developmental pediatrician using standardized tools. You pursue this through your pediatrician's referral — there may be a wait of months.
A school evaluation is separate. Under IDEA, any child aged 3+ can be evaluated by their school district for free, within a defined timeline (typically 60 days from your written request). The school evaluation determines educational eligibility and can unlock an IEP — even while you wait for a medical appointment.
You can — and often should — pursue both at the same time.
If your child is under 3: Early Intervention
Early Intervention (EI) provides free evaluations and services — speech therapy, occupational therapy, developmental therapy — to children birth through age 2 with a developmental delay.
No referral and no diagnosis is required. Call your state's EI program directly. The 60-day evaluation clock starts from your referral date. Because services end at age 3, earlier is better.
Your action checklist
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Who helps with this?
The law
Federal
Federal screening guidance and Parent Center referrals start here.
The system
Your state
Your state's Early Intervention agency (under 3) or school district (3+) can evaluate at no cost.
Add your location above to see state-specific resources.
The people
Your area
Pediatricians and developmental specialists in your community.
Set your county to see local help.
Primary sources
- CDC — Developmental milestones
- Center for Parent Information & Resources — Find your PTI— Free advocacy support in every state.
- HHS — Early Intervention (IDEA Part C)